Advocacy

Thalassemia is a lifelong disease and needs a lifelong treatment. Due to the disease severity and its expensive treatment, a prevention program should be instituted. AMTF have planned to work in phases i.e. in Phase-1 to work on awareness at school, colleges, universities, print/ electronic media and in coordination with other bodies inclusion of thalassemia awareness in the curriculum as well the implementation on the said legislation.

AMTF in collaboration with other bodies will work at every thalassemia centre in Pakistan where we work hard on thalassemia index cases, screen their first relatives and siblings of index cases. AMTF is doing thalassemia screening for every registered patient’s family. All thalassemia centre should present their data that they have screen there centre once we screen every centre it means we will screen most of the potential.

In Phase-2 as an alliance of all thalassemia bodies should go for implementation of law for screening program before marriage. Also documentation of the screened status on either each of the documents i.e. CNIC, passport or driving license level.

Any prevention program requires data collection followed by interpretation. In Pakistan We have given enough knowledge about Polio, Hepatitis, HIV but NOT about thalassemia .We should provide the knowledge first to the general public and give them time to interpretation. This is not possible for success of any prevention program if we do not provide data /knowledge and ask public to interoperate.

For carrier screening we will do complete blood count, as well as hemoglobin electrophoresis or hemoglobin high performance liquid chromatography.AMTF offered prenatal diagnosis to the pregnant woman/couple at risk for having a fetus affected with a clinically significant thalassemia or haemoglobinopathy. Prenatal diagnosis should be performed with the patient’s informed consent.

How can we help you?

Contact us at the AMTF office or submit a Inquiry form online.

#AMTF Blood Donation Camp at Amreli Steels (Dhabeji Unit)
April 24, 2019
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Ms. Fariya Zameen (Head of Marketing) & Mr. Muhammad Azam (Head Services Marketing) from Faysal Bank visited #AMTF
April 24, 2019
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#AMTF Thalassemia Awareness Session at Amreli Steels - Dhabeji Unit
April 23, 2019
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#AMTF Blood Donation Camp at Greenwich University, Karachi
April 16, 2019
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#AMTF Blood Donation Camp at PAF-KIET, Nazimabad Campus
April 15, 2019
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#AMTF Blood Donation Camp at Institute of Business Management (IoBM)
April 9, 2019
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Dr. Asim Qidwai, Founder & CEO AMTF had a meeting with High Commissioner Pakistan at Canada Mr. Raza Bashir Tarar in Ottawa
April 4, 2019PRESS RELEASE
April 04, 2019
Dr. Asim Qidwai, Founder & C.E.O of Afzaal Memorial Thalassemia Foundation (AMTF) called on the High Commissioner of Pakistan, Raza Bashir Tarar and briefed him on the work of the Foundation in the field of health care related to children from blood disorder.
The High Commissioner appreciated the plan of the Foundation for conducting awareness sessions with the Pakistani community living abroad. He agreed with the vision of the foundation to deliver the utmost level of passionate care to the patients of thalassemia. The High Commissioner urged the founder for developing synergy among the institutes working in Pakistan on the childhood blood diseases.
Dr. Asim Qidwai also informed the High Commissioner for his drive to include thalassemia awareness and prevention in the curriculum of high schools and colleges of Pakistan.
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